Cohen was discharged on a Monday. Today is a Monday and it has been three SOLID weeks since his discharge from the hospital and time has truly flown by. We now look forward to Mondays so much more than Sundays. Sundays were more often than not the days that we returned to the hospital. If Sunday blues wasn't already an issue...this would always top it off! The hospital stays always seemed to take forever and days felt like weeks in there. All of the countless hours we waited around for doctors to come see us in our room, or hours waiting for Cohen to be off food for a procedure, or hours of trying to get him to sleep in a well-lit room with nurses taking vitals every hour. Hours and hours of wasted time and time that we would never get back. But being home now, none of that matters. It's hard to even imagine what life was like living out of a reusable TJ bag shuffling our belongings to and from the hospital and waiting all of those hours. It's crazy to even say, but it doesn't even seem like it was that length of time that we spent being a separated family living in two different places. Because now life is so amazing and meaningful that the hours spent at home are finally filling those hours that were lost.
Cohen has started his therapy at home and is really starting to improve on his development. He will be doing physical therapy twice a week, occupational therapy once a week, and a nutritionist will also be following him three times a month.
Today we went to two more follow up appointments: Urology and Cardiology. Urology went well and the fluid that was shown in Cohen's kidneys from our 20 week ultrasound with him is continuing to clear up and is very minimal now. He is scheduled to finally get circumcised as well in June, which is rather exciting for Ryan :)
Cohen's cardiologist Dr. Randolph has been by our side since Cohen was only hours old. Also Isla's cardiologist (don't worry she only has a small heart murmur that has been healing on it's own quite nicely), he has been the constant doctor in Cohen's life. He was able to weigh in on the changes in his breathing over the months in the hospital for the new doctors Cohen would see, what was baseline for Cohen, and has been very supportive of and sometimes even a shoulder to cry on when times were tough. He was impressed with Cohen's last echo from the hospital so the plan is to repeat one every few months and to monitor his hole to hopefully watch it close on its own. "I think he is finally over that hump" he said today which made me smile ear to ear. Hearing a professional say that only validates the way we have been feeling at home.
Also asking a rather difficult question today I received a rather disappointing answer. Cohen won't be flying anytime soon! I have been unable to travel home now for over 10 months. Being from California, I had visited there the previous July while pregnant with Cohen but because I was pregnant and then he was born and we have spent our time in the hospital, I have been unable to go back home to visit friends and family and show off the little guy. I am so homesick it is unreal. Some friends and family have been able to fly out to visit us and Cohen (usually while in the hospital), but it's never the same as flying back to California. Never being able to see everyone in the same place at the same time is something that makes me cry just thinking about. It was my mom's birthday today and over the weekend everyone got together (cousins, grandparents, everyone except for me and my family) to celebrate her special day with her. My mom was able to come visit and finally see Cohen in our home and not the hospital. She spent a week here and when she left it made me miss home even more.
As for visitors...anyone who wants to come visit us the door is always open and we have an extra bed :)
We'll leave you with a video of Cohen from today. His newest trick....starting to laugh!